Sababa vanotarisira vane cerebral palsy, ndakaedza kugadzirira, asi kusununguka kwechimbichimbi kwakandipa kosi yokuputsika.
Mushure mekunge ndaverenga zvakawanda zvekutakura vana paInternet, handina kuwana imwe yaizondibvumira kusunga mwana pachipfuva changu neruoko rumwe chete. Mumwedzi mishoma, mudzimai wangu Lisa achasununguka mwana wedu wekutanga, uye ndiri kutsvaga mutakuri akakwana kuti ndisunungure kunetseka kwangu semukadzi ane pamuviri ane cerebral palsy.
Ndakaedza tambo nhatu dzakaratidzwa muchitoro, imwe yaive yechipiri-ruoko, uye imwe yakatengwa online, iyo yakaita sediki hammock. Kugadzirisa chero ipi zvayo neruoko rwako rworuboshwe chete haisi sarudzo-uye chido chekusungira zvidimbu zvakawanda zvemucheka pamwe chete zvinoratidzika sejoke ine utsinye. Ndavadzosa kuchitoro, ndakazobvuma kuti Lisa aifanira kundibatsira kusungirira kamwana kedu kakomana keseat belt.
Pazera re32, CP yangu inogona kudzorwa kazhinji yenguva. Kunyange rutsoka rwangu rwerudyi ruchitsika, ndinogona kufamba ndega. Hanzvadzi yangu yakandidzidzisa kusunga tambo dzebhutsu pandakanga ndichiri kuyaruka, uye ndakadzidza kutyaira ndichibatsirwa nemichina inochinjika mumakore angu ekuma20. Kunyange zvakadaro, ndichiri kutaipa neruoko rumwe.
Pasinei zvapo neganhuriro dzezuva nezuva, ndakapedza makore mazhinji ndichiedza kukanganwa kuti ndine hurema, uye kutozosvikira munguva pfupi yapfuura ndakaregeredza kuzivisa CP yangu kudzimwe dzeshamwari dzangu dzapedyo zvikuru nemhaka yokutya kwangu rutongeso. Patakatanga kudanana makore masere apfuura, zvakanditorera mwedzi kuti ndiudze Lisa nezvazvo.
Pashure pokunge ndaedza kuvanza ruoko rworudyi rwakakombama uye rwakagara rwakakomba kwenguva refu kwoupenyu hwangu hwose, zvino ndakatsunga kubvuma zvizere urema hwangu panguva yaLisa pamuviri. Ndakadzokera kukurovedza muviri kwenguva yokutanga kubvira ndichiri muduku kuti ndidzidze unyanzvi hutsva, hwakadai sokuchinja manapukeni nemaoko ose, kuti ndigokwanisa kugadzirira mumuviri mwana wangu wokutanga. Zvinokoshawo zvikuru kuti ndiwane kugamuchirwa mumuviri wangu wakaremara, ndichigadza muenzaniso wokuzvida nokuda kwomwanakomana wangu Noa.
Mushure memwedzi mishoma yekuvhima kwedu, Lisa akazowana BabyBjörn mini tambo, iyo murapi wangu wepanyama neni takafunga kuti ndiyo yakanakisa sarudzo. Iyo tambo ine snap yakapfava, zvimedu, uye diki buckle. Ndinogona kuzvigadzirisa neruoko rumwe, asi ndichiri kuda rubatsiro kuti ndigadzirise. Ndiri kuronga kuyedza mutakuri mutsva nemimwe midziyo yekushandisa ndichibatsirwa naLisa mushure mekunge mwanakomana wedu asvika.
Chandaisatarisira ndechekuti kurera mwana sechirema kwaizonetsa sei mwana wangu asati adzoka kumba. Kusununguka kunorwadza uye kukurumidza pashure pokunge ndasununguka zvaireva kuti ndaifanira kutarisira Noah kwemazuva maviri okutanga oupenyu pasina betsero yaLisa.
Mushure memaawa makumi mana ekuberekwa-kusanganisira maawa mana ekusunda, uye apo chiremba waLisa paakaona kuti Noa akanga akamira, chikamu chechimbichimbi cheC chakaitwa-mwana wedu akauya munyika ino ane hutano hwakanaka, ane eyelashes refu uye yakanaka- chidzitiro chechokwadi icho chiremba akaridza mhere panguva yekuvhiya.
Lisa akaseka zvake namukoti uku achinhonga nhonga twunhu twainge twakakosha munzvimbo yainge yapora, ndakaedza kusimudza mwana wedu neruoko rwangu rwerudyi kuti amai vake vaone matama ake ainge akarara pedyo nesu. Ndakaisa pfungwa dzangu pakuchengeta maoko angu akatsiga, nekuti CP yangu yakaita kuti rutivi rwangu rwerudyi rushaye simba uye rushoma, saka handina kuona vanamukoti vakawanda vachitanga kufashamira mumba.
Vanamukoti vakanetseka pavakaedza kumisa kurasikirwa neropa. Ndakatarisa ndichishaya zvekuita, ndichiedza kudzikamisa kuchema kwaNoah nekurara paruoko rwangu rwerudyi rwaidedera nekamuviri kake.
Lisa akadzokera pasi peanesthesia kuitira kuti chiremba aone nzvimbo yaibuda ropa uye akaita oparesheni ye embolization kuti kubuda ropa kumire. Ini nemwanakomana wangu takaendeswa kukamuri rokusunungukira tiri toga, Lisa achienda kukamuri yevanorwara zvikuru kunoongororwa. Pakuzosvika mangwanani anotevera, anenge agamuchira hwerengedzo yemayuniti matanhatu eropa uye mayuniti maviri eplasma.
Chiremba waLisa aingodzokorodza kuti paakaendeswa muimba yekusunungutsa mushure memazuva maviri ari muICU, vakafara kumuona ari mupenyu. Panguva imwe cheteyo, ini naNoa tiri toga.
Vamwene vangu vakabatana nesu munguva dzeshanyo, vachindibatsira chete pazvaidiwa, uye vachindipa nzvimbo yekuisazve Noa apo ruoko rwangu rworudyi rwakavharwa nokusazvidira. Ndine chokwadi chekuti mabhureki achabatsirawo, kunyangwe ndaisatarisira kuiburitsa pakuchinja diaper.
Muchipatara chaizunguza chigaro, ruoko rwangu rwerudyi rwakanga rwakarembera zvisina simba nekuti ndakaona kuti ruoko rwangu rwakanga rwusina kuenzana rwakaita kuti Noah agadzikane, ndikamusimudza ndokumudyisa neruoko rwangu rweruboshwe-ndakakurumidza kuiwana pasi pegokora rangu rekurudyi Ndakatutira mapiro nekuzembera pabeche. pinda ruoko rwangu rwakakotama ndiyo nzira. Plastic bhegi rine kepu yebhodhoro rake rinogona kuvhurwa nemazino, uye ndakadzidza kubata bhodhoro pakati pechirebvu nemutsipa ndichimusimudza.
Makore mashoma apfuura, ndakazorega kunzvenga mibvunzo nezveCP yangu. Pakasimudza munhu ruoko rwandakatadza kudaira ndakabva ndangoti ndine hurema. Imba yekusunungukira haisi nzvimbo inondinetsa nekuremara kwangu, saka ndinozivisa mukoti wese anouya kuzoona Noah kuti ndine CP.
Zvandisingakwanisi zviri pachena kupfuura kare. Sababa vakaremara, vabereki vangu vachave vasina kusununguka zvikuru. Ndinowanzoonekwa semunhu asina kuremara, uye zvinoshungurudza kurarama pakati pezvinofungwa nevakawanda kuti ndezvenguva dzose uye zvinoda rubatsiro. Zvisinei, mukati mamazuva edu maviri tiri mukamuri iroro rokuberekera, ndakanga ndine chivimbo mumano angu okurera Noa ndokuzvidzivirira ndimene.
Pane rimwe zuva reSvondo rinopisa mavhiki mashomanene pashure pokunge Lisa abudiswa muchipatara, akaisa Noah muhanzu, iyo yakanga yakasungirirwa pamapfudzi angu nechipfuva pakati petambo. Ndinoshandisa ruoko rwangu rworudyi, sezvandakadzidza muchipatara, kumubata panzvimbo, apo ruoko rwangu rworuboshwe rwakasungirirwa kumusoro. Panguva imwe cheteyo, Lisa akaedza kusunda makumbo aNoah akarembera nomumaburi maduku kwandaisasvika. Paakangosimbisa bhendi rokupedzisira, takanga tagadzirira.
Tapedza nhanho dzekudzidzira kupinda muimba yekurara, ini naLisa takafamba rwendo rurefu mudhorobha medu. Noah akarara museat belt akamonerera torso yangu, akachengeteka.
Christopher Vaughan munyori anoshandawo mukutsikisa magazini. Anogara nemukadzi wake nemwanakomana muTarrytown, New York
Nguva yekutumira: Nov-15-2021
