Njengomntu oza kuba ngutata onecerebral palsy, ndazama ukuzilungiselela, kodwa ukuhanjiswa ngokukhawuleza kwandenza ndawa.
Emva kokufunda inqwaba yabathwali babantwana kwi-Intanethi, andizange ndifumane enye eya kundivumela ukuba ndibophe umntwana esifubeni sam ngesandla esinye kuphela. Kwiinyanga ezimbalwa, umfazi wam uLisa uza kuzala umntwana wethu wokuqala, kwaye ndijonge umthwali ofanelekileyo wokuthomalalisa ixhala lam njengomfazi okhulelweyo one-cerebral palsy.
Ndazama iintambo ezintathu eziboniswe kwivenkile, enye yayiyisandla sesibini, kwaye enye yathengwa kwi-intanethi, ebonakala ngathi i-hammock encinci. Ukulungisa nayiphi na kubo ngesandla sakho sasekhohlo akusiyo inketho-kwaye imfuneko yokubopha iziqwenga ezininzi zelaphu kunye kubonakala ngathi ihlaya elikhohlakeleyo. Emva kokuba ndibabuyisele evenkileni, ekugqibeleni ndavuma ukuba uLisa kufuneka andincede ndibophe usana lwethu oluyinkwenkwe kwisihlalo sebhanti.
Kwiminyaka eyi-32, i-CP yam inokulawulwa ixesha elininzi. Nangona unyawo lwam lwasekunene lunokuxinana, ndiyakwazi ukuzihambela. Udade wethu wandifundisa indlela yokubopha imitya yezihlangu xa ndandikwishumi elivisayo, kwaye ndafunda ukuqhuba ngoncedo lwezixhobo eziguqukayo kwiminyaka yam yama-20. Nakuba kunjalo, ndisachwetheza ngesandla esinye.
Phezu kwayo nje imiqathango yemihla ngemihla, ndachitha iminyaka emininzi ndizama ukulibala ukuba ndinesiphene, yaye kude kube kutshanje ndiye andakuhoya ukutyhila iCP yam kwabanye babahlobo bam abasenyongweni ngenxa yokoyika kwam isigwebo. Ukuqala kwethu ukuthandana kwiminyaka esibhozo eyadlulayo, kwandithatha inyanga ukuxelela uLisa ngale nto.
Emva kokuzama ukufihla isandla sasekunene esigoso nesisoloko sibambene ngaso sonke isikhathi ubomi bam bonke, ngoku ndizimisele ukukwamkela ngokupheleleyo ukukhubazeka kwam ebudeni bokukhulelwa kukaLisa. Ndabuyela kunyango lomzimba okwesihlandlo sokuqala ukususela ebuntwaneni ukuze ndifunde ubuchule obutsha, njengokutshintsha amanapkeni ngezandla zozibini, ukuze ndilungiselele ngokwasemzimbeni umntwana wam wokuqala. Kukwabaluleke kakhulu kum ukuba ndifumane ukwamkeleka kumzimba wam onesiphene, ndimisela umzekelo wokuzithanda ngonyana wam uNowa.
Emva kweenyanga ezimbalwa zokuzingela kwethu, uLisa ekugqibeleni wafumana i-BabyBjörn mini strap, apho ugqirha wam wenyama kunye nam ndacinga ukuba lolona khetho lungcono. Umtya unee-snap ezilula, iikliphu, kunye neyona buckle incinci. Ndingayilungisa ngesandla esinye, kodwa ndisafuna uncedo lokuyilungisa. Ndiceba ukuzama isithuthi esitsha kunye nezinye izixhobo eziguqukayo ngoncedo lukaLisa emva kokuba unyana wethu efikile.
Into ebendingayilindelanga kukuba kuya kuba nzima kangakanani ukukhulisa umntwana njengesiphene kwangaphambi kokuba unyana wam abuyele ekhaya. Ukubeleka okubuhlungu kunye nongxamiseko emva kokubeleka kwakuthetha ukuba kufuneka ndinyamekele uNowa kwiintsuku ezimbini zokuqala zobomi ngaphandle koncedo lukaLisa.
Emva kweeyure ezingama-40 zokubeleka-kubandakanywa neeyure ezine zokutyhala, kwaye xa ugqirha kaLisa wafumanisa ukuba uNowa ubambekile, kwenziwa i-C-section yongxamiseko-umntwana wethu weza kweli hlabathi esempilweni entle, ene-eyelashes ezinde kwaye ezintle- umkhusane ukuba ugqirha wakhwaza ngexesha uqhaqho.
ULisa waqhula nalosisi eqokelela iimpawu ezibalulekileyo kwindawo yokuchacha, ndazama ukuphakamisa usana lwethu ngengalo yam yasekunene ukuze unina abone izidlele zakhe ezirozi zilele ecaleni kwethu. Ndagxila ekugcineni iingalo zam zizinzileyo, kuba i-CP yam yenza ukuba icala lam lasekunene libe buthathaka kwaye lixinene, khange ndibaqaphele abanye abongikazi beqalisa ukugcwala kwigumbi.
Abongikazi babenexhala xa babezama ukunqanda ukopha. Ndajonga ndiphelelwe ngamandla, ndizama ukuthomalalisa isikhalo sikaNowa ngokungqengqa kwingalo yam yasekunene engcangcazelayo nomzimba wakhe omncinci.
ULisa wabuyela emva ethotyiwe ukuze ugqirha akwazi ukuphawula indawo yokopha aze enze utyando lokufafaza ukunqanda ukopha. Mna nonyana wam sathunyelwa kwigumbi lokubelekela yedwa, ngoxa uLisa waya kwigumbi labagula kakhulu ukuze ajongwe. Ngentsasa elandelayo, uya kufumana isimbuku seeyunithi ezintandathu zotofelo-gazi kunye neeyunithi ezimbini zeplasma.
Ugqirha kaLisa wayemane ephinda esithi xa etshintshelwa kwigumbi lokubelekela emva kweentsuku ezimbini eseICU, bavuya bakumbona ephila. Kwangaxeshanye, mna noNowa sisedwa.
Umazala wayesithelela ngamaxesha otyelelo, endinceda kuphela xa kuyimfuneko, yaye endinika indawo yokubeka uNowa xa isandla sam sasekunene sivalekile. Ndiqinisekile ukuba i-braces nayo iya kuba luncedo, nangona ndingalindelanga ukuyikhulula xa utshintsha i-diaper.
Kwisitulo esishukumayo sasesibhedlele, isandla sam sasekunene sasijinga buthathaka kuba ndafumanisa ukuba umphambili wam ongalinganiyo wawugcina uNowa ezinzile, ndamphakamisa ndamtyisa ngesandla sasekhohlo-ndakhawuleza ndasifumana phantsi kwengqiniba yasekunene Ndihlohla imiqamelo ndangqiyama ngomntwana ngena ingalo yam egobileyo yindlela yokuhamba. Iplastiki enekepusi yakhe yebhotile inokuvulwa ngamazinyo, kwaye ndafunda ukubamba ibhotile phakathi kwesilevu nentamo xa ndiyiphakamisa.
Kwiminyaka embalwa edlulileyo, ekugqibeleni ndiyekile ukuphepha imibuzo malunga neCP yam. Xa umntu ephakamisa isandla endingazange ndikwazi ukumphendula, ndandisithi ndinesiphene. Igumbi lokubelekela asiyondawo endikhathazayo ngokukhubazeka kwam, ngoko ke ndibhengeza kuwo wonke umongikazi oza kujonga uNowa ukuba ndineCP.
Iintsilelo zam zicace ngakumbi kunangaphambili. Njengotata onesiphene, abazali bam baya kuba sesichengeni. Ndisoloko ndijongwa njengomntu ongakhubazekanga, kwaye kuyakhathaza ukuhlala phakathi kwezinto abantu abaninzi abacinga ukuba ziqhelekile kwaye bafuna uncedo. Noko ke, ebudeni beentsuku ezimbini sikwelo gumbi lokubelekela, ndandiqinisekile ukuba ndiyakwazi ukukhulisa uNowa nokuzikhusela.
NgeCawe eyayinelanga elitshisayo kwiiveki ezimbalwa emva kokuba uLisa ephumile esibhedlele, wafaka uNoah kwintambo eyayibotshelelwe emagxeni am nasesifubeni phakathi kwentambo. Ndisebenzisa ingalo yam yasekunene, njengoko ndafunda esibhedlele, ukuba ndimbambe endaweni yakhe, ngelixa isandla sam sasekhohlo sibotshelelwe kwi-snap ephezulu. Kwangaxeshanye, uLisa wazama ukutyhala imilenze etyebileyo kaNowa kwimingxuma emincinane ukuba ndingafikeleli kuyo. Emva kokuba eqinise iqela lokugqibela, sasilungile.
Emva kwamanyathelo athile okuqhelisela kwigumbi lokulala, mna noLisa sahamba umgama omde kwidolophu yethu. UNowa wayelala kwibhanti lesihlalo elibhijelwe emilenzeni yam, ekhuselekile kwaye ekhuselekile.
UChristopher Vaughan ngumbhali okwasebenza ekupapasheni iimagazini. Uhlala nenkosikazi kunye nonyana wakhe eTarrytown, eNew York
Ixesha lokuposa: Nov-15-2021
